Written 23/01/19 @ 19:34 hours. To my females with Aspergers group and females with adhd group. Not so sure about the response though

Good evening ladies. I’m at crossroads in my career well I’m at crossroad with everything in my life at the moment but I will like to address career today.
I am a paediatric nurse with 16 years experience. I love nursing children. However the politics and everything else that came with it really put me off. I had to leave clinical nursing for family balance and I have been working in commissioning. I have become so frustrated with the system that I no longer want to be a part of it. My job entails assessing children who have health needs over and above is being currently provided by the NHS. I recommend the support packages needed to support their health and sit on a panel with social care and education (who have also assessed as required) to request funding for the recommended packages. I see the suffering and understand the suffering of families ( because I am those families in my private life) and listen to the responses and views of the professionals on the panel. I see how much money is being squandered on reaction to crisis instead of investment to save in support systems that actually make a difference. I see support systems created by people with good intentions who haven’t got a clue that their amazing ideas are actually not what the service users need or they will never engage with the service because the lack of understanding of the service users needs has made it not fit for purpose. I have lost all belief in a system I represent and I don’t know what to do about it.
I am trying to be rationale and not walk away from my job as it is contract and that ends in March. Financially I am not able to leave my job and doing so will make things worse. So I am trying to find a plan that will keep me going knowing that I will eventually be able to do something that truly makes a difference.
My thoughts were to try and create a service that supports women and females on the spectrum especially women with late diagnosis. I am one of those women and Autism is not one of my problems. As an adult woman most of my problems are the traumas I live with that developed as a result of not being supported as a person with autism and my struggles to compensate for my limitations. That is individual to most people with autism that’s why we don’t all turn out the same. We are individuals, we are people, we are different. You know one autistic person, you know one autistic person. You get the gist.
I am thinking of sending out a survey to as many women with autism as I can. The criteria will be late diagnosis 18 and above so all adult women.

I will like to know if they had access to a support service what support would they require to lead a functional life

What does a functional/ fulfilling life mean for you?

Secondly what are the issues women have struggled with that led them to seeking diagnosis

Would you be interested in helping with my survey please? I need to do something and I need to start somewhere. I apologise for taking up your time.
I’d appreciate it if you are able to show your interest in the comments below.
I will also post in the ADHD group as well because we coexist in many cases and it will make sense to have a service that includes both.

Thank you.

Published by

Identity 4422

Coming to terms with late diagnosis of Autistic spectrum disorder- Pathological Demand Avoidance Sub type. I also have severe ADHD and have battled depression and anxiety for most of my adult life. Well most of my life really. I am at complete burnout in my life;physically, mentally, emotionally and spiritually. My mental and physical health is pretty bad at the moment. However I have been through the darkest hours and I have made it alive. I have survived life in flight and flight mode. I have lived with extreme fear subconsciously all my life. Fear or failure, fear of getting found out. I have lived with shame. I tried to live up to the fantasy of what I thought life should look like in my head and my fantasy became my reality. In order to move forward with my life, I need to begin to live in my truth. But where do I start? I’m nearly 40 years old. I start by facing my demons fear and shame. When I asked the question who I’m I? The universe started a chain reaction and I’m starting to trust my journey. I believe that everything I have been through is in preparation of what is to come. You never know who resilient you are until you have to face the situation and I am grateful for my journey. I asked the question “what is my purpose” the universe started a chain reaction. My life is like an unfinished jigsaw, every piece is one step closer to the complete masterpiece. I am Autistic I am a work in progress

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